7-31-2021Slow Day

(Marilyn's Perspective)

I won't go into detail about what yesterday was like for me, but it was just like Tricia's experience with Linda slumped over in the wheelchair and no one seeming to care and I had to go out in the hall four times to finally get someone to get her back into bed.  I left there yesterday in tears.  It is so frustrating to be helpless.

So moving to today, I got there around 9:00 and she was in bed and awake.  But after a short while, she closed her eyes and slept.  And she is now getting in the habit of sleeping kind of criss-crossed in the bed with one leg hanging off and that makes me afraid that she might fall off the bed.  I guess I can't worry about everything.

She tried to talk but I simply could not understand her.  The only thing she said that I understood was "I don't want to be here any more."  It's heartbreaking.

Tomorrow when I see the speech therapist I plan to ask if there's anything we can do to help her with her speech.

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