8-4-2021 Today wasn't as good as yesterday

(Marilyn - AM)

I didn't go yesterday because I joined a Parkinson's support group and my first meeting was yesterday.  Then I had a chiropractor appointment because my back is killing me.  But Tricia was there yesterday and it was a phenomenal day, full of hope.

I arrived today around 10:00 expecting to be thrilled with Linda's progress, and when I went in Linda's room she was dressed and in her wheelchair.  When she saw me, she said, "Oh good, you're here.  Did you bring a car?"  I asked her why and she said, "You're going to get me out of here and we need a car."  I explained that we weren't going anywhere and she didn't like that answer.  

Nothing she said today was understandable and by noon she was slumped over in the wheelchair and not talking.

They have removed her catheter and the feeding tube is being attached and unattached to kind of wean her from it and get her eating food more and more.  She says she has to go to the bathroom but refused help.  She tried over and over and over to stand up and just couldn't.  Yet she keeps swearing that she can stand.  

I wheeled her around a bit and she swears she saw Tricia and wanted to go see her.  Then she looked in one room and said it was Sue's room.  I said Sue was in Mountain View and Linda said "I know that -- that's where we are."  I told her we weren't but she wouldn't accept that answer.

She said she just wasn't comfortable with being in someone else's house and we needed to move her out of there before the owners got home.

She said things like: "Dysfunctional 7."  I asked what she meant and she shrugged her shoulders. That's especially funny because the other day when I asked her what color her car was, she said, "7."

I guess that's it for today.  I came home because I couldn't handle how angry she was getting at me.  I wish we could figure out why she can mentally be the old regular Linda on one day and then La La Land the next.  Also, she seems to respond to Tricia better than me.  Maybe that goes back to our youth where I was the big sister who played tricks on her; whereas, she actually helped raise Tricia.  Very Freudian?

(Marilyn - PM)

Tricia couldn't make it to the Nursing Home tonight so I went back for a few hours this evening.  Linda wanted to know why I came if all I was going to do was sit there and do whatever I pleased rather than get her out of there.

She ate her dinner:  pureed hamburger, pureed broccoli, pureed potato salad and pureed cookie.  Doesn't that sound yummy?  LOL.

She says over and over that she needs to go to the bathroom but when I tell her I need to get the nurses she says "Never mind."

When she drifted off to sleep, I tiptoed out.

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