8-8-2021 Sunday

(Marilyn)

I got there around 9:00 as usual.  The lady in the room across the hall was full throttle today.  In a wheelchair going up and down the hall running into walls and also aiming for -- and hitting -- nurses. Yikes.

Tricia bought Linda some new clothes and Linda and I spent a bit of time looking at the clothes and getting them put away

Then Linda told me that Satan was in the room and I should be careful.

Linda said she wasn't in any pain today but then a bit later she was moaning and she said her right side hurts and that it also hurts "down there."  Way back when she went into St. Luke's she had the same pain and it was a UTI.  So I talked to the nurse about it and she will talk to the doctor.  I also left a note on the Nurse Practitioner's desk.

Linda was also coughing this morning.  The nurse said she hadn't heard Linda coughing but she would listen for it.  She said Linda's temperature is normal.

Linda asked me to please move the apple.  It took a while but I finally figured out she was talking about her foot.  It kept sliding off the bed.  So I put it back on the bed (that wasn't as easy as one would think) and then she let it slide off again.  I put it back and she slid it off.  She was smiling.  It was our new game.

She wanted to know if Bobby had ruined his social standing and I told her no.

She wanted a cup of water so I got one for her and she told me it wasn't water. I said it was.  She said it wasn't, etc. etc. Then the nurse walked in with some water and Linda said, "Now, that's water."  The nurses came in to change her bed out, after which Linda fell fast asleep and I left.



Comments

Post a Comment

Popular posts from this blog

12-25-2022 Merry Christmas to all!

Image
(Tricia) Since Linda came home from the hospital in November, it has been much quieter than it was before she went in.  No more physical therapy, very few nursing visits. Hospice started up again two weeks ago, but Linda has turned down most services (such as the bath aide and chaplain). She has been telling us that she wants to rest, so we are giving her that. She does get up in her wheelchair almost every day, which at least gives her a change of scenery. Last Tuesday, we did take Linda to a previously scheduled doctor's appointment with a neurologist specializing in cognitive issues such as brain injury and dementia, at a practice is called the St. Louis Center for Cognitive Health. I almost canceled the appointment, because I didn't think much would come of it. But this was an appointment I had rescheduled after canceling one in July the last time she was in hospice (and I had made that appointment in March-- the joys of American healthcare). When I canceled the July appoin...
Read more

3-24-2023 "Never Roger, always Ed!"

Linda's brain injury has brought with it a host of maddening symptoms, but one of the most prevalent is that it has made her not just unable to remember people's correct names, but at times seemingly unwilling to. This has been especially true for Ed's name.  For some reason, her brain is convinced that there are actually two males living in this house--one named Roger and one named Ed. When we ask her what each one looks like, she points to Ed and says, "They both look like him!"  And, of course, when we ask the obvious follow-up question, "Then why do you think they're two people?" she will respond with some version of "Their hair is different" or "They wear different clothes." We don't know where this comes from. We don't think she's connecting Ed to her neighbor in Mountain View or our cousin in Indianapolis (hello to both of you!).  But the mix-up has been there since she first started talking after coming out of ...
Read more

10-4-22 Quick update

(Tricia) I just wanted to post an update about how things have gone since Linda was discharged from hospice last week. We took Linda in to see Dr. Kevorkian on Saturday, and he decided he wanted to wait to remove the drain in her right side until she was at home and lying down. So, he's actually going to make a home visit this Thursday for the drain removal. He also has now established the start of insurance-covered PT -- they will be coming in to evaluate Linda on Friday. This is bittersweet, because we really like the private pay therapist who has been working with Linda to this point. She has helped Linda improve considerably, and she seemed genuinely sad today when I told her about the switch.  But I am having her come at least one more time (on Thursday). From there, we'll see how St. Luke's Home Health's PT services work for Linda.  Today was a PT day as well, and it went very well. Linda sat up on the side of the bed with some assistance for 10 minutes--a record!...
Read more