12-1-21 Update

(Marilyn)

The last few days have had lots of ups and downs.  She is doing wonderfully on her ability to walk but still has a way to go. Needs to continue with physical therapy but hates it.  She wants to get rid of the electronic bracelet but of course it has to stay.  In the morning hours she has trouble finding words but in the evening she does much better.

We think the C Diff infection is back and we are having a heck of a time trying to find an infectious doctor.  She just can't win for losing.

Yesterday she told me that since Tricia has always wanted a harpsichord (what??) Linda wanted to buy her one for Christmas.  And she said Ed always talks about music so she wants to get him a rewind conical (??)

She has made friends with the screamer across the hall and their conversations are interesting (LOL).  

I'm still recovering from my fall.

Tricia and Ed spend a lot of time with Linda but I go less often because Linda usually kicks me out.

Today I bought her some yarn and crochet hooks.  She used to love crocheting so we are hoping to get her interested again.  You can only watch so many Hallmark movies.  

I could go on and on, but you get the picture.

Comments

Post a Comment

Popular posts from this blog

12-25-2022 Merry Christmas to all!

Image
(Tricia) Since Linda came home from the hospital in November, it has been much quieter than it was before she went in.  No more physical therapy, very few nursing visits. Hospice started up again two weeks ago, but Linda has turned down most services (such as the bath aide and chaplain). She has been telling us that she wants to rest, so we are giving her that. She does get up in her wheelchair almost every day, which at least gives her a change of scenery. Last Tuesday, we did take Linda to a previously scheduled doctor's appointment with a neurologist specializing in cognitive issues such as brain injury and dementia, at a practice is called the St. Louis Center for Cognitive Health. I almost canceled the appointment, because I didn't think much would come of it. But this was an appointment I had rescheduled after canceling one in July the last time she was in hospice (and I had made that appointment in March-- the joys of American healthcare). When I canceled the July appoin...
Read more

3-24-2023 "Never Roger, always Ed!"

Linda's brain injury has brought with it a host of maddening symptoms, but one of the most prevalent is that it has made her not just unable to remember people's correct names, but at times seemingly unwilling to. This has been especially true for Ed's name.  For some reason, her brain is convinced that there are actually two males living in this house--one named Roger and one named Ed. When we ask her what each one looks like, she points to Ed and says, "They both look like him!"  And, of course, when we ask the obvious follow-up question, "Then why do you think they're two people?" she will respond with some version of "Their hair is different" or "They wear different clothes." We don't know where this comes from. We don't think she's connecting Ed to her neighbor in Mountain View or our cousin in Indianapolis (hello to both of you!).  But the mix-up has been there since she first started talking after coming out of ...
Read more

10-4-22 Quick update

(Tricia) I just wanted to post an update about how things have gone since Linda was discharged from hospice last week. We took Linda in to see Dr. Kevorkian on Saturday, and he decided he wanted to wait to remove the drain in her right side until she was at home and lying down. So, he's actually going to make a home visit this Thursday for the drain removal. He also has now established the start of insurance-covered PT -- they will be coming in to evaluate Linda on Friday. This is bittersweet, because we really like the private pay therapist who has been working with Linda to this point. She has helped Linda improve considerably, and she seemed genuinely sad today when I told her about the switch.  But I am having her come at least one more time (on Thursday). From there, we'll see how St. Luke's Home Health's PT services work for Linda.  Today was a PT day as well, and it went very well. Linda sat up on the side of the bed with some assistance for 10 minutes--a record!...
Read more